Steve Krause

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  • in reply to: First posting in Personal Gout Diary #3480
    Steve Krause

    After five and half weeks on 100mg of allopurinol per day I went and got lab tests. My UA dropped from above 9.1 down to 5.5. My ALT level actually got better, down from 29 to 19. My Creatinine lowered from 1.25 to 1.19 which is in the normal range. So I appear to be tolerating the allopurinol this time.

    I have not had any dramatic gout attack during the last five weeks. My ankles and feet have felt sore and stiff at times but not hot or swollen. One wrist hurt but might have been a pulled tendon or ligament from lifting something heavy and that went away in a couple days. The rheumatologist has prescribed Sulindac (two per day), an NSAID that he says might be easier than ibuprofen on the kidneys, to be taken as needed if I need pain relief. I have taken them when my feet felt kind of stiff. I don’t know if the stiffness is from the gout but taking the Sulindac is effective for that. I’ve taken one at a time about 3 a week.

    The doctor has said that getting the UA level under 6 is good and to continue with the 100mg and test in four months. I am going to do that. Anybody have any predictions whether the allopurinol will continue to lower the levels? It would be great if it really brought the levels lower over more time at that dosage, as my liver and kidneys have so far tolerated that level.

    in reply to: First posting in Personal Gout Diary #2939
    Steve Krause

    I am at day 10 and taking 100mg per day. I will step up to 200mg in about the 4th week and get tested in the 6th week while taking that dosage. My doctor has said that is not the standard way to ramp up, testing at 6 weeks is, but that a slow ramp up might be helpful to prevent gout attacks that can happen while people are starting to increase dosages. That’s what my rheumatologist at Kaiser in California is telling me.

    BTW, as part of this personal diary and as info for others, in the first 5 or 6 days I was feeling a lot of itching, mostly in legs, but I am feeling less itching since then.

    in reply to: Where can I buy an Accurate Uric Acid Monitor? #2755
    Steve Krause

    Yes, I am also thinking about buying a uric acid meter.

    First posting on this forum:
    I am in my sixties. I have had gout attacks over the last five years. About 3 or 4 a year. They go away as quickly as they come on when I take Cholcisine and Ibuprofen as soon as feel the attack.

    I also have had kidney stones and bladder stones. Recently had a procedure to blast apart the huge bladder stone that grew in my bladder. The stones are mostly from uric acid.
    I also have had psoriasis for many years. One of my doctors has told me that excess skin production, which is what is happening with psoriasis, raises the uric acid levels.
    Recently badly sprained my foot and it triggered a gout attack in that foot. Then accommodating the boot and limping I was doing caused problems in the other foot. Some swelling like gout and maybe just muscle and tendon/ligament problems. Saw a rheumatologist that suggested it might also be psoriatic arthritis, since he could see some minor bone joint problems in the foot x-rays.
    I am considering whether to take medication for psoriatic arthritis and also take medication for gout. Tried Allopurinol a year ago. Found from a followup lab test about 6 weeks into it that the uric acid was lowering but had to stop because the lab test showed kidneys were not working as well, but maybe that was because I was taking ibuprofen often at the same time.
    I am considering trying it again but would like to see what I can do with diet change and see if I can lower the uric acid level without it.

    Regarding diet change: I’ve never been much of a beer drinker so that was easy to stop. I do like one or two oz of vodka, gin or tequila on a Friday night. Not much wine. Dropped the shell fish, I eat red meat once or twice a week but not large amounts, usually. The one thing that I think I’ve noticed that does trigger gout sometimes is Vietnamese soups. Maybe it’s the broth. But even that doesn’t always cause an attack, but it does sometimes. I am drinking lots of green veggies and trying to drink at least half as much water as I know I should, for both gout and kidney stones, and general health.

    Regarding a blood level monitor: are there any comparison tests out there as to which monitors are more accurate? Also, what is the general opinion about how often do you use the device. Every day? Every week? Every month?

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